Transitioning from Pediatric to Adult Rheumatology
Moving from pediatric to adult rheumatology care is an important step as you grow into a young adult with a rheumatic condition, like juvenile arthritis or lupus. This transition helps you take more control of your health while keeping the care you need to manage symptoms, prevent flares, and enjoy quality of life.
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Starting early
The process usually starts around age 12–14, when your pediatric team begins teaching skills like explaining your medical history, tracking medications, booking appointments, and speaking up about pain or concerns. You'll practice these during visits to build confidence.
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What to expect
Adult care focuses more on you as the main decision-maker. Visits may be shorter and center on your symptoms and treatments, with less family involvement unless you want it. The goal is to support your independence, school, work, and daily life.
It's normal to feel worried or sad about leaving your familiar pediatric team. Many young people do. Talk openly with your doctors, ask questions, and share what helps you feel prepared. With good planning, this change can lead to stronger self-management and better health as an adult. Your care team is here to guide you every step of the way!
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Resources for patients and families
American College of Rheumatology (ACR) Transition Toolkits:
Specific toolkits for juvenile idiopathic arthritis (JIA) and lupus, with patient welcome letters, self-assessments, medical summaries, and "Five Things to Know" fact sheets. Designed to help prepare for the switch to adult providers.
Arthritis Foundation Juvenile Arthritis Transitions Section:
Resources for teens and young adults with juvenile arthritis, including webinars on moving to adult care, tips for college/school, emotional self-care, and preparing to see an adult rheumatologist.